Rare diseases are defined as as those afflicting populations of fewer than 200,000 patients, or about 1 in 1,500 people. There are about 7,000 rare diseases, the majority of which are genetically related and commonly affecting the very young (infants). At first glance, rare diseases seem to only... Read more
Download the free All Things Open interview series eBook Joanne Rohde is CEO of Axial Exchange, which creates mobile tools to help patients overcome the challenges of living with chronic disease. She believes healthcare must become more consumer driven and transparent, and she doesn’t believe... Read more
On September 4 - 6 the open source electronic health records community came together at the 2nd annual OSEHRA Summit and workshop, in Bethesda, Maryland. Day 1: tutorials on a variety of topics Day 2: high-level presentations from members of the community with unique vantage points in the community
A new Linux Foundation Collaborative Project has the potential to advance science through the use of open source software. The Linux Foundation announced this week that it is joining forces with the life sciences information framework OpenBEL, an open source software project that captures,... Read more
Clinovo is a Clinical Research Organization (CRO) that partners with life science companies to streamline their clinical trials. Their CTO Marc Desgrousilliers is managing the development of ClinCapture, their open source Electronic Data Capture (EDC) system. In this interview, he tells us more... Read more
Tracing the career path of Dr. Kongkiat Kespechara is like reading a treasure map: there are twists and turns and surprises all along the way, but promises an unfolding bounty at the end. Here are some of his current activities: Dr. Kespechara is a still-practicing MD, a software entrepreneur, an... Read more
How the economics of open source make sense for large scale, national healthcare infrastructure projects. A recent study published by the Journal of the American Medical Informatics Association, examined "the use of open source electronic health records within the federal safety net."
If doctors can't be as accessible and transparent as the tablet or smartphone that lay in the hands of their patients, they can't expect to gain the respect of those they try to heal.
In part one of this tutorial, I introduced the integration between the hierarchical data structures of the M database and the hierarchical structures of the Node.js language. Here, in part two, I focus on the fact that this integration is equivalent to incorporating persistance storage in the Node.... Read more
As the open source ethic has changed the way that we share and develop resources, crowdsourcing is redefining how we can create new resources based upon that willingness to share. One example of crowdsourcing at work for the betterment of us all is public health researchers turning to Twitter to... Read more