Live webcast today: Harnessing the power of data to improve health

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Opensource.com

Today the Department of Health and Human Services and the Institute of Medicine are holding their second forum to discuss how health data can be used to support healthcare systems and patients in informed decision making.

More than 40 companies will be participating, and the featured speakers include Aneesh Chopra, US CTO; Tim O'Reilly, O’Reilly Media; Matt Miller, NPR; Harvey Fineberg, IOM President; Todd Park, HHS CTO.

You can follow along on Twitter with the hashtag #healthapps or watch the live webcast yourself at http://videocast.nih.gov/ or http://www.hhs.gov/live/.

You can also mark your calendars now for an opensource.com Open Your World Forum webcast with Todd Park, to be held July 7 at 3 p.m. Eastern. Registration will be available soon.

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Ruth Suehle
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Ruth Suehle is the community leadership manager for Red Hat's Open Source and Standards team. She's co-author of Raspberry Pi Hacks (O'Reilly, December 2013) and a senior editor at GeekMom, a site for those who find their joy in both geekery and parenting.
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Ted Mylenbusch | June 24, 2011
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<em>"how health data can be used to support healthcare systems and patients in informed decision making"</em>

Having been educated and trained as a nurse and healthcare administrator I view the supportive role that health information plays as varying based on the setting and invasive degree of the contemplated medical technology intervention. In a clinical healthcare setting involving situations where patients are contemplating highly invasive medical interventions the primary goal is one of insuring that "informed conset" is attained according to laws and social standards in the locale. As a nurse I must be a patient advocate and promote the right of a patient to be informed about all aspects of his/her care. Within a community setting this would more likely involve prevention, early detection, and disease management as the major emphasis with IT providing age, sex, race, and risk based medical educational information, screening tracking, communication via social, email, and automated mailings, support group tracking, referral automation, concurrent tracking of adherance and compliance and capture of outcomes that include morbidity and mortality. I see the development of new or revised community based portals into the healthcare system that provide assistance for individuals whose medical problem(s) exceed their capability to provide self-care. Emphasis would be to increase knowledge, skills, instill motivation, and emphsize the individuals role as their own and their dependents provider of self-care. The role of the healthcare system would be to assess and address deficits in self-care and provide supportive medical care in situations that overwhelm the individuals ability to provide for their own or dependents self-care. The goals are always to return or maintain the individual's capability to provide for their own self-care and realize the highest level of wellness in a qualitative and quantitative sense.

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